Tuesday, March 24, 2009

well did started it

Last week Thursday she started using the CGMS so far I dont know if I really like it or not. I know everyone tells me it takes time, that there is a learning curve ect. We are now into day 6 and its not been fun!!! I'm beginning to wonder why I wanted this for her?? I still haven't had a day that its been on track with her BG I have had a few hours in a day it may be close..I have a hard time calibrating her since she runs some wild numbers at times or she wants to eat and not wait that 15 or so mins so I can calibrate the sensor..or like last night I did 3 calibrations but forgot that you have to do one at least every 12 hours so of course I got alarms, and I got one for a high the CGMS had her at 175 but her meter was almost 400 that was at 2am my normal time I check her at night by 3 the cgms caught the high..sigh so I was up again for that one, then I did a calibrations error at 3 when that high alarm went off then I forgot my 12 hours calibration..
I guess I'm at the what was I thinking point when it comes to the CGMS...please tell me it gets better....
trying to take care of the kids and Sam is hard when going on little to no sleep...funny I thought the CGMS was suppose to help us get a little more sleep...lol

Sunday, March 8, 2009

Thinking out loud

Samantha has now been on the pump for almost a year and in that years time things have ran pretty smoothly. I fax in her log sheets every few weeks and only a handful of times has the nurse called to have me make a slight change in her basals..Now for the pass month she has been sick on and off and her numbers have been rather on the high side like 300 and 400's no real pattern till just 4 days ago I noticed that her 4pm numbers have been high where the rest of the day is pretty good unless we make a mistake in carb counting or she get a snack at school that was right after her lunch ( for some reason it doesnt come down as nicely) So after reading some post on my favorite web site Childrens with diabetes I figure its time I get brave and start to make a few changes..so I did my first basal increase today I was cautious and did one for 3pm today I put in another basal for 3pm..now my question is the school only test her at 12:30 and 3:00pm and I see the 3:00 number is higher then I like but do I change it for 3 or try 2:30??? how long before if at a certain time do you make a basal??? I think maybe today I should go back to every 2 hour testing instead for meals and when she is not feeling right...I still do the 2am testing maybe I should try for a midnight 2am and maybe 5am... I have my safety net knowing that tomorrow I fax the nurse....I hate always second guessing myself but that seems to be all I do with diabetes and its control :O(
only 11 more days till we have the cgms training :O) I hope that helps

Saturday, February 28, 2009

Its going fast!!!

We were just told a few days ago that our insurance will now cover the CGMS then two days later they tell me its been ordered and should be here in a few days....yikes, now all the second thoughts are running through my head...what if its more of a hassle then I want to put up with, what if it doesn't work as well as I expect it to, what about finding places to place another site. Samantha will be the only kid at our endocrinologist office with one (we go to a peds endo) so she will be paving the way for other kids, oh geeze this can be stressful! I wish I could just fast forward a few months to see how this all works out...lol

Tuesday, February 24, 2009

we have been approved!!!!!

we have been approved for the CGMS Last July I tried for one but found it to be an up hill battle so I gave up, that was till this Jan and Samantha started having a few unaware lows...so I picked up where I left off. I got my Dr to write a letter, sent in all my bg logs, sent in anything and everything I could think of..yesterday I sent in the last letter ( the one from her Dr) and me being the way I am I cant seem to wait for anything...lol so I called my insurance company to find out if there was anyting missing and the rep told me as of yesterday you no longer need a preauth..that I can just go ahead and order it I'm still in shock.. I called minimed to order it today but my rep is out of the office already so now I have to wait till tomorrowI still cant believe this...I was gearing up for a battle too...lol

Friday, February 20, 2009

E-bay store

well I did it I wasn't going to but I just love coming up with new ideals for pump packs for Samantha and I get carried away making them, that I decided to put up an E-Bay store and try my hand at selling them.. the link is http://stores.shop.ebay.com/pumping-made-fun__W0QQ_armrsZ1 if you stop by please let me know what you think :O)

Wednesday, February 18, 2009

Trying for the CGMS

well so for I have all my daily charts in for the pass 2 months, I have my reg Dr NOT the endo writing a letter of medical need to my insurance company..her Endo thinks the insurance company will not cover it so why waste his time....grrrrr. I have Minimed doing all the rest of the paper work and in a week everything should be turned into my insurance company from that time I was told it may take 2 to 6 weeks to see if its approved or denied, if its denied Minimed will do the appeal process for me. I m doing a lot of praying thats for sure.

Friday, January 23, 2009

It can be confusing???

Samantha now has been running Trace Ketones now for 3 days, this is a now one on me since she has been a Diabetic she hasn't had Ketones other then in the hospital. Her BG is up and down all over the place in fact. She isnt running a fever ..I had to rule that one out since its winter and it seems that everyone I talk to they have or had the flu. She is eating and drinking not feeling sick in fact she tells me she feels great..so WHY the Ketone????? I talked to the nurse at the Dr's office and she told me to just keep an eye on her give her lots to drink and check her ketones and BG often..ok I m doing that have been since she has been diagnosed. I m just so confused here, the poor girl is running to the bathroom all the time since I m making her drink water all the time..lol
Today I will fax her log sheet for this week and see if the Dr has anything to say, I was told they will not make corrections while she is spilling ketones or if they think she is ill, but they just want to see her numbers anyways.
From having this nice experience and with the 4 lows the first part of this month hypos to where she didnt even know she was having one..yay a nice 47 which for her is very very low she usually doesnt feel good when she hits 85. So I am a bit uneasy and I now even more want to get her the CGMS my insurance will cover it IF they think its medically necessary...now for that big question what to THEY think is necessary??? The rep at Minimed seems to think we have a good chance in getting the system and that was before the nice week of Ketones..keeping my fingers crossed and doing lots of praying it will all work out

Wednesday, January 21, 2009

ahhh the first post..lol

ok where do you begin? As you can tell by my blog name that this blog is going to be about Diabetes ;O)

Diabetes isn't something new to me I have loved someone with Diabetes all my life but up till a year and a half ago I knew really nothing about Diabetes or the way it can change your life..some for the better if you can believe that.

My older sister has Diabetes, she was 11 years old at the time my parents were told, she is 53 now so you can image how the care was back then compared to today..while living everyday with my sister having Diabetes I never knew what it was or anything about it, my parents tried to make our lives as normal as possible. Sure as a little girl I would come home from school every now and then to be greeted by a big old red fire truck and my sister being taken out of the house on a gurney now and then, or the trips to the hospital to see my sister but even that I was clueless, Diabetes didn't affect my life..I know that sounds bad. Then when I was 14 my mother was diagnoses with Diabetes again being the self centered teen I still had no clue what was going on. I kind of figured things were a bit different since my mom cared for her Diabetes soooooo much different then my sister. My mom took care of her self, tested all the time ( at that time it was still the urine testing) I remember seeing mom take shots, I don't have these memories with my sister, really the only one of needles is my sister chasing me around the house with an empty syringe telling me she was going to give me Diabetes...you know you can do things like that to the little sister ( 6 years apart in age) My sister would eat when and what she wanted no matter what my parents tried to do, my mom ate at a certain time every day, ate certain foods life, sure was different..I know you think why wasn't it that way for my sister? First off it was a long time ago when my parents were still learning and by the time my sister was only 5 years into her diagnoses she was married yep at the tender age of 16 she was married ( don't ask that's a LONG story) so jump up another 7 years and in that short time Diabetes care was changing...nothing like today though!!!! My point is even with both my mom and sister being Diabetic I was still in my own world and didn't have a clue till it hit me right in the face. My daughter Samantha was diagnosed with diabetes in the year 2007 at the age of 8 just 9 days after her 8th birthday..that's when the world of Diabetes came crashing into my world.
Samantha is one of 11 children well at the time of diagnoses she was only one of 10..I was 5 months pregnant at the time with her baby brother. The day was like any other normal day she was outside playing having fun nothing strange. I called her in for dinner she ate then afterwards she told me she didn't feel well. She ran to the bathroom and got sick :O( I thought she was coming down with the flu since two of the kids she was playing with had it, so I didn't think too much about it. The night she throw up a few more times and slept in between. The morning came and the first thing she did was run to the bathroom and throw up again I was a bit worried but still thinking the flu, that was until she came out of the bathroom...the girl was gray in color and looked like she had lost 20 pounds over night. I called the Dr right away and he told me more then likely she was just dehydrated from the flu and to take her to the ER. Trying to get her out to the van was hard she was weak and tired she kept asking me to carry her, I helped her as much as I could being she was a good 50 pounds and I was pregnant. The nurses at the hospital took their time I was going crazy we were there for about 45 mins before someone seen us and when they did they rushed her into a room and TRIED getting an I.V in her, They took her to X-Ray and did blood test it was a good 3 hours later before a Dr came in and told me that she had ketones and her blood sugar was 1200..yikes. I still at the time didnt know how bad it was still thinking ok they do the I.V and she will be fine, I was not thinking that the day before was the last day of our old life. They had to transport her from that hospital to another since the one we were at didnt have a peds i.c.u.
The second I walked into the i.c.u with my daughter ( she was on a stretcher) the Dr looked and me in a clam voice and said your daughter has type 1 Diabetes, at that point you could have knocked me over with a feather., that thought never entered my mind. He told me how lucky she was still alive and that she was very ill :O( . We spent 1 1/2 days in i.c.u then off to a normal room for the next 3 days. Time to pay att and learn how to care for my daughter...I have to say those first few days were the scariest of my life...the first day home I freaked so many times, I wondered how god could entrust her life to me how was I going to learn to give shots, tell when she is having a hypo, know what and how to count carbs...I had so many what ifs going on in my head. Those first few days weeks even are such a blurr. I really think we as parents should start a network to give a hug to all the new parents who have to enter this world of Diabetes, just to let them know we understand and if you need a hug or to talk we are there...yes the Internets has been a great support for me, I have met a lot of wonderful people @ children with diabetes ...THANK YOU!!! they were my life line, but they need to set something up at the Dr offices or something in your area... I was lucky my daughters school hooked me up with another parent from a different school who's 5 year old daughter who had Diabetes she was such a great help for me in the beginning!!!