wow its been like forever...

I cant believe my last post was back in 09..that makes me sad to think that life with diabetes is now my normal.. its hard to remember life without diabetes in some way rearing its ugly head..having it always on my mind even when I dont think its there. Samantha now is 12 years old, she was dxd 9 days after her 8th birthday Aug 25th funny how we never forget that date, the date that changes your whole life and the life of not only your child's but family and friends too.

Having a girl with diabetes and one that has now entered puberty is a whole new set of rules...did I say rules, what was I thinking diabetes has no rules. Just when I thought I had things pretty set, things change and just when you almost get use to those changes it changes again...like days to weeks of very high numbers correcting over and over again changing setting in the pump testing every two hours sometimes every hour, to only still see high numbers...then out of the blue we have low after low to where you have to force her to eat...and believe me getting a sleeping child to eat in their sleep is NOT easy! As bad as this may sound I will take the highs over the lows anyday.

We went back to using the CGM after a 6 month break ( new insurance company = new battle to get it approved again) I love the CGM I dont think Samantha does..the poor kid is a walking alarm lately...lol I just cant understand how she can tune it out like she does..she walks pass me buzzing all the time.."Sam your buzzing" "Sam cant you hear that" "Sam????" these are my daily comments to her. The CGM is like a love hate relationship here..I love I mean love seeing trends but with puberty trends dont mean anything, I love getting alarms when she is dropping but I hate when she is dropping since she cant drop a little at a time you get to see a nice nose dive graph on the screen only to have a stubborn low that I have to treat time and time again then to have the CGM alarm that she is now high...sigh such is life now. The highs seem to be easy to fix TG for something easy!

Next week she will be starting Volleyball oh joy something new to add to the mix.. they will be having practice everyday after school so that means time to make changes in her pump so we dont get lows..and pray that the lows if she gets them are during the day and not night. wish us luck!

well did started it

Last week Thursday she started using the CGMS so far I dont know if I really like it or not. I know everyone tells me it takes time, that there is a learning curve ect. We are now into day 6 and its not been fun!!! I'm beginning to wonder why I wanted this for her?? I still haven't had a day that its been on track with her BG I have had a few hours in a day it may be close..I have a hard time calibrating her since she runs some wild numbers at times or she wants to eat and not wait that 15 or so mins so I can calibrate the sensor..or like last night I did 3 calibrations but forgot that you have to do one at least every 12 hours so of course I got alarms, and I got one for a high the CGMS had her at 175 but her meter was almost 400 that was at 2am my normal time I check her at night by 3 the cgms caught the high..sigh so I was up again for that one, then I did a calibrations error at 3 when that high alarm went off then I forgot my 12 hours calibration..
I guess I'm at the what was I thinking point when it comes to the CGMS...please tell me it gets better....
trying to take care of the kids and Sam is hard when going on little to no sleep...funny I thought the CGMS was suppose to help us get a little more sleep...lol

Thinking out loud

Samantha has now been on the pump for almost a year and in that years time things have ran pretty smoothly. I fax in her log sheets every few weeks and only a handful of times has the nurse called to have me make a slight change in her basals..Now for the pass month she has been sick on and off and her numbers have been rather on the high side like 300 and 400's no real pattern till just 4 days ago I noticed that her 4pm numbers have been high where the rest of the day is pretty good unless we make a mistake in carb counting or she get a snack at school that was right after her lunch ( for some reason it doesnt come down as nicely) So after reading some post on my favorite web site Childrens with diabetes I figure its time I get brave and start to make a few changes..so I did my first basal increase today I was cautious and did one for 3pm today I put in another basal for 3pm..now my question is the school only test her at 12:30 and 3:00pm and I see the 3:00 number is higher then I like but do I change it for 3 or try 2:30??? how long before if at a certain time do you make a basal??? I think maybe today I should go back to every 2 hour testing instead for meals and when she is not feeling right...I still do the 2am testing maybe I should try for a midnight 2am and maybe 5am... I have my safety net knowing that tomorrow I fax the nurse....I hate always second guessing myself but that seems to be all I do with diabetes and its control :O(
only 11 more days till we have the cgms training :O) I hope that helps

Its going fast!!!

We were just told a few days ago that our insurance will now cover the CGMS then two days later they tell me its been ordered and should be here in a few days....yikes, now all the second thoughts are running through my head...what if its more of a hassle then I want to put up with, what if it doesn't work as well as I expect it to, what about finding places to place another site. Samantha will be the only kid at our endocrinologist office with one (we go to a peds endo) so she will be paving the way for other kids, oh geeze this can be stressful! I wish I could just fast forward a few months to see how this all works out...lol

we have been approved!!!!!

we have been approved for the CGMS Last July I tried for one but found it to be an up hill battle so I gave up, that was till this Jan and Samantha started having a few unaware lows...so I picked up where I left off. I got my Dr to write a letter, sent in all my bg logs, sent in anything and everything I could think of..yesterday I sent in the last letter ( the one from her Dr) and me being the way I am I cant seem to wait for anything...lol so I called my insurance company to find out if there was anyting missing and the rep told me as of yesterday you no longer need a preauth..that I can just go ahead and order it I'm still in shock.. I called minimed to order it today but my rep is out of the office already so now I have to wait till tomorrowI still cant believe this...I was gearing up for a battle too...lol

E-bay store

well I did it I wasn't going to but I just love coming up with new ideals for pump packs for Samantha and I get carried away making them, that I decided to put up an E-Bay store and try my hand at selling them.. the link is http://stores.shop.ebay.com/pumping-made-fun__W0QQ_armrsZ1 if you stop by please let me know what you think :O)

Trying for the CGMS

well so for I have all my daily charts in for the pass 2 months, I have my reg Dr NOT the endo writing a letter of medical need to my insurance company..her Endo thinks the insurance company will not cover it so why waste his time....grrrrr. I have Minimed doing all the rest of the paper work and in a week everything should be turned into my insurance company from that time I was told it may take 2 to 6 weeks to see if its approved or denied, if its denied Minimed will do the appeal process for me. I m doing a lot of praying thats for sure.